Take Part in Research

We encourage participation in research that aims to make a real difference in the lives of people living with cardiomyopathy.

This could mean participating in a clinical trial, reviewing patient information leaflets, completing a questionnaire, or even taking part in a focus group. By involving people with cardiomyopathy in research, we can ensure the patient perspective is addressed and ensure project outcomes are patient-focused.

We are here to support you to take part in a wide range of high-quality research studies from universities, NHS Trusts, and other accredited research institutions. Take a look at the list of opportunities below and contact the researchers directly for more information about how to get involved. There are usually set criteria for taking part and some people may not always meet the criteria of the study.

More opportunities to take part in research can also be found through the NIHR Be Part of Research page. If you are keen to take part in a clinical trial for a new therapy, we suggest you discuss this with your Healthcare Professional before signing up. Further information on patient participation in research is available from NHS Choices.

If you're a researcher looking for support with recruiting people with cardiomyopathy into your study, please email research@cardiomyopathy.org

GO-DCM Study

Researchers at Imperial College, University of London are leading a new study looking at improving diagnosis and treatment for people living with Dilated Cardiomyopathy (DCM). The team of experts will gather more information than ever before about the condition using advanced genome sequencing, high-tech heart imaging and detailed protein studies. They will search for new genes that cause DCM, and will scan the heart to find out whether damage to the heart muscle, such as scarring, predicts how people with DCM will be affected. The new insights from this project will help to find better ways to diagnose DCM, understand which patients are most at risk from severe disease, unlock clues to new treatments and ultimately prevent the condition.

Do you have Dilated Cardiomyopathy? If so, are you interested in participating in this study?

The research is currently being conducted at the following hospitals in England. If you would like to find out more information about the study, please contact the hospital most convenient to you. 

Leeds

Leeds General Infirmary - leedsth-tr.icresearch@nhs.net

Leicester

Glenfield Hospital - cvresearch@uhl.tr.nhs.uk

London

Royal Brompton and Harefield Hospitals - go-dcm@rbht.nhs.uk

Liverpool

Liverpool Heart and Chest Hospital - research.lhch@lhch.nhs.uk

Oxford

John Radcliffe Hospital - claudia.nunes@nhs.net

Southampton

Southampton General Hospital - strokeresearchteam@uhs.nhs.uk

GO-DCM Study Logo
MuMPreDICT Study
University of Birmingham

Researchers at the University of Birmingham are looking for pregnant women (28 weeks or more) and mothers of under 2’s with cardiomyopathy and another health condition to take part in a survey. This includes physical (e.g., cardiomyopathy, diabetes, asthma, kidney disease, epilepsy, eczema, psoriasis etc.) or mental health conditions (e.g. depression, anxiety etc).

This research will help inform health care provision for pregnant mothers across the UK.

To find out more please contact the researchers at mumpredict@contacts.bham.ac.uk or visit www.mumpredict.org

MuMPreDICT
MITQ Study
Imperial College London and the Royal Brompton Hospital

Researchers at Imperial College London and the Royal Brompton Hospital are recruiting patients into a research study with a diagnosis of dilated cardiomyopathy, whose heart function remains impaired despite usual therapy. They want to see if a new antioxidant therapy called MitQ may help promote recovery in heart function by improving the function of mitochondria, the energy producing centres in patients’ hearts. For more information on this study and how to take part click here

Imperial College London
Heart Hive – Register for Research
Imperial College London

Heart Hive is a new database for individuals who have shown an interest in participating in clinical trials and attempts to match people with researchers looking for trial participants. If you would like to sign up, visit the Heart Hive website.

Heart Hive Logo
CRUCIAL - Vascular Dementia and Heart Failure Study
University College London, KU Leuven, Maastrict University

Vascular dementia and heart failure represent major health burden to morbidity, mortality and quality of life.

Comorbidities (hypertension, aging, diabetes, etc.) affect all organs, but the brain and heart are especially sensitive to these chronic stresses resulting in cognitive impairment (a mental disorder) and heart failure (a non-mental disorder). These comorbidities also induce a reduction in microvascular density, called microvascular rarefaction. Diagnosis of microvascular rarefaction is limited by the inability to assess microvascular density. The CRUCIAL research project brings together a consortium of researchers, scientists and patients to develop a coordinated program to establish clinical tools to measure rarefaction and investigate the role of microvascular rarefaction in cognitive impairment and heart failure. You can find our more about this project here 

CRUCIAL project
MyClimb Study

Are you a parent of a child with paediatric cardiomyopathy? If so, you know first-hand that PCM is a rare and often devastating heart condition. MyClimb is a Natural History Study designed to collect and evaluate information on the course of cardiomyopathy in children and adolescents with the MYBPC3 genetic mutation. This study is sponsored by Tenaya Therapeutics, a biotechnology company committed to discovering, developing, and delivering curative therapies that address the underlying causes of heart disease. If you would like to find out more about this study please click here.

MyClimb Study